Abstract
Caring for a sick relative is not without challenges. Family members who leave their homes to care for a sick relative in an unfamiliar hospital environment encounter more challenges than those who provide care in their familiar home environment. This hospital ethnography was carried out in one of the secondary hospitals in Ghana. Thirty-two caregivers were sampled using the purposive sampling technique. Data was collected through the semi structured interview guide. Using the qualitative exploratory case study, the study revealed that the challenges facing family caregivers are multidimensional. These challenges are classified into three major groups: institutional, environmental, and financial. In response to these challenges, caregivers developed different strategies such as denying themselves some pleasures of life, developing faith in God through prayers and giving the identification card given them by the hospital authority to other relatives who are not recognised by the health professionals as caregivers.
Keywords:
coping, strategies, family caregivers, hospitalisation
References:
1) Ae-Ngibise, K. A., Doku, V. C. K., Asante, K. P., & Owusu-Agyei, S. (2015). The experience of caregivers of people living with serious mental disorders: a study from rural Ghana. Global health action, 8(1), 26957.2) Agbenyefia, G. (2017). The Interface between the Health Professionals and Lay Caregivers At The Koforidua Central Hospital in the Eastern Region of Ghana. Link: ugspace.ug.edu.gh/handle/123456789/26850
3) Andrén, S., & Elmståhl, S. (2007). Relationships between income, subjective health and caregiver burden in caregivers of people with dementia in group living care: A cross-sectional community-based study. International Journal of Nursing Studies, 44(3), 435-446. doi: http://dx.doi.org/10.1016/j.ijnurstu.2006.08.016
4) Assimeng, J. M. (1995). Salvation, Social Crisis and the Human Condition. Accra, Ghana: Ghana University Press.
5) Bee, P. E., Barnes, P., & Luker, K. A. (2009). A systematic review of informal caregivers’ needs in providing home‐based end‐of‐life care to people with cancer. Journal of clinical Nursing, 18(10), 1379-1393.
6) Blum, K., & Sherman, D. W. (2010). Understanding the Experience of Caregivers: A Focus on Transitions. Seminars in Oncology Nursing, 26(4), 243-258. doi: http://dx.doi.org/10.1016/j.soncn.2010.08.005
7) Creswell, J. W. (2008). Research Desisign: Qualitative, Quantitative And Mixed Method Approaches (3rd ed.). New Delhi: Sage Publication,
8) Emanuel, R. H., Emanuel, G. A., Reitschuler, E. B., Lee, A. J., Kikule, E., Merriman, A., & Emanuel, L. L. (2008). Challenges faced by informal caregivers of hospice patients in Uganda. Journal of Palliative Medicine, 11(5), 746-753. doi: 10.1089/jpm.2007.0220
9) Glitin, L. N. (undated). Research on Informal Caregiving: Gaps in Knowledge and Next Steps: Johns Hopkins University Department of Community Public Health and Center for Innovative Care in Aging, School of Nursing Department of Psychiatry, Division of Geriatrics and Gerontology, School of Medicine.
10) Goodhead, A., & McDonald, J. (2007). Informal Caregivers Literature Review: A report prepared for the National Health Committee Victoria University of Wellington.: Health Services Research Centre
11) Hynes, G., Stokes, A., & McCarron, M. (2012). Informal care-giving in advanced chronic obstructive pulmonary disease: lay knowledge and experience. Journal of clinical Nursing, 21(7/8), 1068-1077 1010p. doi: 10.1111/j.1365-2702.2011.03944.x
12) Kasuya R.T (200), Caregiver Burden and Burnout. A Guide for Primary Care Physicians. Postgrad Med. 2000 Dec;108(7):119-23. doi: 10.3810/pgm.2000.12.1324. PMID: 11126138
13) Klopper, J. M., van Dyk, A., & Pretorius, L. (2015). The Experiences of the Elderly and Caregivers in Respect of Caring for the Elderly in Windhoek and Rehoboth Namibia: An Exploratory and Descriptive Study. Open Journal of Nursing, 5, 246-259.
14) Lazarus, R. S. (1993) 'Coping Theory and Research: Past, Present and Future', Psychoso Matic Medicine, 55, Pp. 234-49.
15) Lazarus, R. S. and Folkman, S. (1984) Stress, Appraisal and Coping, New York, Springer.
16) Maslow, A. (1954). Motivation and Personality. New York NY: Harber.
17) McCubbin, H., Thompson, A., & McCubbin, M. (1996). Family Assessment: Resiliency, Coping and Adaptation - Inventories for Research and Practice. Madison, WI: University of Wisconsin System.
18) McCubbin, M., Be McCubbin, H. (1991). Family Stress Theory and Assessment: The Resiliency Model of Family Stress, Adjustment and Adaptation. In H. I. McCubbin & A. I. Thompson (Eds.), Family Assessment Inventories For Research and Practice (pp. 3-32). Madison, WI: University of Wisconsin
19) Morgan, D. G., Walls-Ingram, S., Cammer, A., O'Connell, M. E., Crossley, M., Bello-Haas, V. D., . . . Stewart, N. (2014). Informal caregivers' hopes and expectations of a referral to a memory clinic. Social Science & Medicine, 102, 111-118. doi: http://dx.doi.org/10.1016/j.socscimed.2013.11.023
20) O'Brien, M.T. (1993) Multiple Sclerosis: Stressors and Coping Strategies in Spousal Caregivers: Journal of Community Health Nursing , 1993, Vol. 10, No. 3 (1993), pp. 123-135 Published by: Taylor & Francis, Ltd. Stable URL: https://www.jstor.org/stable/3427308
21) Oliver, D. P., Wittenberg-Lyles, E., Washington, K., Kruse, R. L., Albright, D. L., Baldwin, P. K., . . . Demiris, G. (2013). Hospice Caregivers' Experiences With Pain Management: “I'm Not a Doctor, and I Don't Know if I Helped Her Go Faster or Slower”. Journal of Pain and Symptom Management, 46(6), 846-858. doi: http://dx.doi.org/10.1016/j.jpainsymman.2013.02.011
22) Pratt et al (1985), Burden and Coping Strategies of Caregivers to Alzheimer's PatientsVol. 34, No. 1, The Family and Health Care (Jan., 1985), pp. 27-33 (7 pages) National Council on Family Relations
23) Prouty, A.M., Fischer, J., Purdom, A. et al. Spiritual Coping: A Gateway to Enhancing Family Communication During Cancer Treatment. J Relig Health 55, 269–287 (2016). https://doi.org/10.1007/s10943-015-0108-4
24) Sapountzi-Krepia, D., Raftopoulos, V., Sgantzos, M., Dimitriadou, A., Ntourou, I., & Sapkas, G. (2006). Informal in-hospital care in a rehabilitation setting in Greece: an estimation of the nursing staff required for substituting this care. Disability And Rehabilitation, 28(1), 3-11.
25) Toscan, J., Mairs, K., Hinton, S., Stolee, P., & Team, I. R. (2012). Integrated transitional care: patient, informal caregiver and health care provider perspectives on care transitions for older persons with hip fracture. International Journal of Integrated Care, 12.
26) Twumasi, P. A. (1988). socioeconomic Determinants of Child Health in Ghana. In F. Mackenzie & K. Ewusi (Eds.), Research Issues in Child Health and Child Care, Proceedings of a Workshop held in Accra, Ghana, 22-26 September, 1986. Ottawa, Ont., Canada:
27) Wacharasin, C., & Homchampa, P. (2008). Uncovering a Family Caregiving Model: Insights From Research to Benefit HIV-Infected Patients, Their Caregivers, and Health Professionals. Journal of the Association of Nurses in AIDS Care, 19(5), 385-396. doi: http://dx.doi.org/10.1016/j.jana.2008.04.012
28) Washington, K. T., Meadows, S. E., Elliott, S. G., & Koopman, R. J. (2011). Information needs of informal caregivers of older adults with chronic health conditions. Patient Education and Counseling, 83(1), 37-44. doi: http://dx.doi.org/10.1016/j.pec.2010.04.017
29) Whitlatch, C. J., Schur, D., Noelker, L. S., Ejaz, F. K., & Looman, W. J. (2001). The stress process of family caregiving in institutional settings. The Gerontologist, 41(4), 462-473.
30) Williams, K., & Durrance, J. C. (2008). Social networks and social capital: Rethinking theory in community informatics. The Journal of Community Informatics, 4(3).